Imagine being near the end of your life and not being able to connect with your loved ones or hear your doctor’s recommendations for your care. You would probably feel lonely, frightened and perhaps depressed. But the unfortunate reality is that thousands of hospice patients experiencing hearing loss are in this exact situation every day.
Complex challenges of hospice care
The care of those in hospice presents a multitude of challenges for patients as well as their caregivers and family members. Amid pressing concerns such as medical care, pain management and legal and financial concerns, families often become overwhelmed and hearing loss is often at the bottom of the list of priorities. Hearing loss in hospice patients can often be mistaken for dementia or confusion, so the inattention can leave a patient feeling helpless, marginalized and lonely.
It’s a substantial problem - according to the Centers for Disease Control and Prevention 80 percent of Americans ages 85 and older have hearing loss to some degree. In addition, many cancer patients can lose hearing due to effects of chemotherapy or certain ototoxic pain medications. All in all, more than 24,000 out of every 100,000 patients in hospice have hearing loss.
Among many others, two important issues for end-of life care are pain management and social, cultural and religious needs and wants. These alone make communication the most essential element when it comes to hospice care. For example, a patient needs to have a complete understanding of the medical care being provided, including pain management and medications; not only for safety reasons but in order for him to feel a sense of control over his final stages of life. How are they feeling? What do they want? These questions, asked and understood, can go a long way toward improving the quality of care.
Being able to clearly hear and communicate wishes with caregivers and loved ones reduces the sense of loneliness and isolation that can often accompany a patient’s final days. It also gives a patient a sense of autonomy, which is important for emotional well-being. “Hospice care is based on [the patient’s] need and comfort,” said Deb Athans, a hospice social worker at Hospice of Cincinnati. “When you can’t communicate effectively, that is what is sacrificed.”
Keeping hospice patients connected
There are important steps to ensure that a hospice patient can continue to be a part of the conversation and to improve the quality of care. The first step, however, is establishing if there is a hearing loss in the first place. And for that, the family first needs to communicate with the staff in order to make the patient’s needs known. Once the presence of hearing loss is established, here are a few tips to help caregivers and family members help their loved ones:
Have those important last conversations
Hospice patients with hearing loss need not be lonely and isolated. From participating in decisions regarding their final days to allowing them to hear the voices of their family, attention to hearing care can enable those with hearing loss to be active participants in their own lives for as long as possible. More importantly, no longer will hearing loss cause things to be left unsaid or unspoken between family members and their loved ones. “It is so important to have those last conversations with family,” Athans said. And hopefully new movements toward understanding and working with hearing loss in hospice patients will lead to greater compassion in end-of-life care.
Contributed by Lisa Packer, staff writer, Healthy Hearing
January 4, 2018